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    "result": {"pageContext":{"language":"en","pathURL":"sapnaben-arvindbhai","isDefaultLanguage":true,"storyData":{"Name":"Sapnaben Arvindbhai","Alt_Photos":null,"Alt_Text_Photo1":"Sapnaben (24) stands amidst a lush green field of corn. She is stooping slightly to touch one of the long, spear-shaped leaves that reach her thigh. She wears a crimson cotton half-sleeved round-necked kameez and a salwar printed in a design of small, light grey and crimson squares edged with white. A dupatta in the same fabric as the salwar is draped around her shoulders with the ends tied together in front.","Alt_Text_Photo2":"Mid shot of Sapna in a large room with a brown corrugated-iron roof and a light grey mud floor. She wears a charcoal-grey sweater with a hoodie and sleeves rolled up to the elbows. She is standing in front of a single-burner ash-grey cast iron stove on which there is a large black kadai filled with boiling oil. With her right hand she is popping an uncooked samosa into the oil. The kadai has several cream-coloured raw samosas floating in the oil. To the left there is a steel plate with raised edges, containing a heap of fried samosas, on top of a large white iron box with glass sides. ","Alt_Text_Photo3":"Sapna, wearing her crimson printed salwar-kameez, stands in the back verandah of her house. Her long black straight hair is backcombed and tied. The house is made of bare reddish clay bricks fused with grey cement. The verandah is a rectangular space enclosed by a plain brick half-wall with an opening where Sapna stands facing outdoors. She holds an armful of dried clothes. Hanging on the clothesline in front of her and above her head, there is a white full-sleeved shirt, a faded blue pair of trousers, and a red kameez.","Alt_Text_Photo4":"Sapna sits cross-legged on a string cot woven with grey plastic fibre. She wears a purple kameez and a purple salwar printed with a white floral pattern. She has worn her charcoal-grey sweater with the hoodie over the kameez. With a thin-bladed knife she is peeling a purple onion which she holds with both hands. Two shallow steel plates are in front of her. On the cot, to the left, there is a light green transparent plastic bag filled with purple onions. A little further, in front of her, there is a white transparent plastic bag filled with large brown ginger.","Alt_Text_Photo5":"Sitting cross-legged on a grey mud floor from left to right: Sapna’s mother Savitaben (47), Sapna, and her sister Vilashben (30). Sapna’s father Arvindbhai (49) stands sideways to the right of the frame in front of a raised platform. Behind the women there is a grey half-wall and the rest of the wall consists of a sky-blue plastic sheet that protects the indoor space from the elements. There is an ash-grey single-burner cast iron stove on the platform next to Arvind. On top of the stove there is a large black iron kadai. Arvind is slipping an uncooked cream-coloured poori into the kadai with his right hand. Savita wears a peach-coloured half-sleeved cotton nightie. There is a large aluminium bowl on the floor in front of her. In the bowl there is a light green transparent plastic bag full of cream atta dough. Holding up the rubbery dough with her right hand she is pinching out some of it with her left hand. Sapna wears a maroon and white striped cotton salwar-kameez and dupatta. There is a steel plate in front of her filled with discs of dough. Also on the plate next to the discs is a scattering of white atta flour. Holding a beige wooden rolling pin in her left hand she is dipping a disc of dough into the flour. Vilashben wears a black salwar and a purple shawl wrapped around her head and shoulders, completely covering her upper body. There is a rolled-out poori on a circular black chapati-stone in front of her.","Alt_Text_Video":null,"Photo1_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Sapnaben_Arvindbhai/_O2A8106.jpg","Photo2_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Sapnaben_Arvindbhai/_O2A8037.jpg","Photo3_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Sapnaben_Arvindbhai/_O2A8128.jpg","Photo4_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Sapnaben_Arvindbhai/_O2A8088.jpg","Photo5_URL":"https://egsweb.s3.ap-south-1.amazonaws.com/Sapnaben_Arvindbhai/_O2A8166.jpg","Name_English":"Sapnaben Arvindbhai","Language":"en","Disability":["recFLxRvgFGELpeWQ"],"Gender":"Female","Instagram_Content":"Sickle cell disease (SCD), an inherited blood disorder, is endemic to India’s adivasi population. It appears as though Sapnaben Arvindbhai (24) from Dumali village in Gujarat’s Chhota Udaipur district has been fortunate enough to escape the worst symptoms of SCD, which include periodic episodes of extreme pain, and anaemia that requires blood transfusions.\n\nSapna is one among the four daughters of Arvindbhai (49) and his wife Savitaben (47) who belong to the Rathwa tribe. On the walls of Rathwa houses one might find Pithora art, the ritualistic paintings of the Rathwa and Bhil tribes, often showcased in crafts museums. But this particular Rathwa house is built of clay bricks left bare and unplastered. The family makes ends meet by growing corn and rice. \n\nSapna, like her sisters, went walking to school in Tejgadh. “She failed the 10th Standard exams twice, so she stopped studying,” says Arvind. Sapna’s health did not cause undue concern – she was thin and occasionally tired – and it was only before her marriage to Mayur at around age 20 that they got her blood work done in Tejgadh and discovered she had SCD. She has been on medication since. “She has to take pills,” says Arvind. “We get it from the government hospital every month.”\n\nTo supplement their income from farming the family operates a small shop from a portion of their house, making and selling bhajiyas (pakodas) and samosas. While Mayur is a contract labourer, Sapna manages the shop. Everyone pitches in to share the farming and selling snacks. \n\n“We will get one of my daughters married this year,” Arvind muses. Sapna’s elder sister Vilashben (30) was married but got divorced and now lives with the family. The youngest daughter is in 11th Standard and has chosen the Arts stream.","Quote":"“The government hospital gives me pills for my disease. I help my family sell fried snacks”","Status":"Published","Video":null,"Website_Content":"Sickle cell disease (SCD), an inherited blood disorder, is endemic to India’s adivasi population. It appears as though Sapnaben Arvindbhai (24) from Dumali village in Gujarat’s Chhota Udaipur district has been fortunate enough to escape the worst symptoms of SCD, which include periodic episodes of extreme pain, and anaemia that requires blood transfusions.\n \nSapna is one among the four daughters of Arvindbhai (49) and his wife Savitaben (47) who belong to the Rathwa tribe. On the walls of Rathwa houses one might find Pithora art, the ritualistic paintings of the Rathwa and Bhil tribes, often showcased in crafts museums. But this particular Rathwa house shows no signs of it, for it is built of clay bricks left bare and unplastered. The family makes ends meet by growing corn and rice that Arvind sells at the local market. When our interviewer asked him whether he knew of the Bhasha Centre for Research and Publication in Tejgadh he said they live just two miles away from it. (The Adivasi Academy is the Centre’s signature project.) \n \nSapna, like her sisters, went walking to school in Tejgadh. “She failed the 10th Standard exams,” says Arvind. “She tried twice but could not pass. So she stopped studying.” Sapna’s health did not cause undue concern – she was thin and occasionally tired – and it was only before her marriage to Mayur at around age 20 that they got her blood work done in Tejgadh and discovered she had SCD. She has been on medication since. “She has to take pills,” says Arvind. “We get it from the government hospital. We go and get one month’s supply of medicines.”\n \nTo supplement their income from farming the family operates a small shop from a portion of their house, making and selling bhajiyas (pakodas) and samosas. While Mayur is a contract labourer, Sapna manages the shop. Everyone pitches in to share the workload, whether it’s farming or selling fried snacks. \n \n“We will get one of my daughters married this year,” Arvind muses. Sapna’s elder sister Vilashben (30) was married but got divorced and now lives with the family. The youngest daughter is in 11th Standard and has chosen the Arts stream.\n","State_name":"Gujarat","Display_Order":253}}},
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