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“I like being on stage in school drama programmes. I go to the beach and watch children run”

Imagine being on an island, unwinding on a sandy beach, snorkelling or scuba diving in jewel-hued lagoons brimming with marine life that you view through a glass-bottomed boat. It sounds like paradise – but only if you’re a tourist. Visitors to the many islands in the Union Territory (UT) of Lakshadweep know nothing about the daily struggles of the islanders who provide the services they enjoy.
 
Kavaratti Island, the capital of Lakshadweep, is no more than 5.8 km long and 1.6 km wide. If you stay in the government-run UT Guest House there, you may be unaware that Cheriyakoya Mullappura (47) is one of its employees. The department where he works is responsible for collecting and warehousing vegetables and bakery goods imported by ship from Kochi; these are then delivered to the kitchen according to its daily requirements. Cheriyakoya has difficulty walking because, as he told us, he was born with one leg shorter than the other, and a curved rib because of which he cannot lift heavy weights. But he gives no importance to his ‘40 per cent disability’ because he focuses his attention on his eldest child, Safuvana Sherin (11), who is certified as 100 per cent disabled.  
 
Neither Cheriyakoya nor his wife Khamarunnisa Kunninamel (37) was able to put a name to her disability, just that it is “related to the nerves”. Her disability certificate says ‘Intellectual Disability’ but her parents tell us she has never been able to walk, stand up or hold objects in her hand; moreover her speech is impaired.
 
Cheriyakoya is the sole earning member of his family which includes his sons Mohammed Razza Zayan (9) and Mohammed Razik (4). When Safuvana was just three months old her parents found her head and neck movements abnormal. Later on, they noticed her assuming an awkward position when sitting. When she was around seven months old they took her to a hospital in Kochi where the doctor suggested physiotherapy. Although the baby’s condition improved with physio sessions they could only afford to stay on for six months, and their financial condition prevented them from travelling there frequently for treatment.
 
Khamarunnisa’s mother, elder sister and family live in a house on Kadmat Island. Zayan lived with his grandmother for a while, before Razik was born and the couple was dealing with Safuvana on Kavaratti. But when Cheriyakoya lost his job at the UT Guest House they moved to Kadmat. Cheriyakoya used to earn during the Covid pandemic by selling homemade food, especially for the people in quarantine. The family moved back to Kavaratti recently when he regained his job.
 
On Kadmat, although Safuvana was registered in a government school, a teacher used to come home frequently to give her lessons, and she would write exams from home with the help of a scribe. She also used to attend a daycare for children with special needs. On Kavaratti she is now in fourth standard in a Malayalam-medium government school that has promised to send home a teacher.
 
Safuvana liked going on stage to take part in cultural programmes in school, says Cheriyakoya. In her Kadmat school she once sat on stage dressed as a bride in an Oppana performance. [Oppana, a folk genre specific to the Mappila Muslim community of Kerala, is usually performed at weddings where a group of women dances in a circle around the bride dressed in her finery and sings the traditional Mappila Paattu.] She also used to take part in fancy dress programmes on Independence Day and other occasions. “I hope she gets such opportunities in her new school here as well,” says Cheriyakoya.
 
Khamarunnisa has to help Safuvana with her daily activities such as going to the toilet, taking a bath, and changing her dress. She likes going out and frequently visits the beach where she watches other children running about. She also has friends in the neighbourhood. She enjoys watching TV and listening to Mappila Paattu and Malayalam film songs that her mother plays for her on the mobile.
 
“If special schools and physiotherapy facilities can be improved at Lakshadweep, it would be a great support for children with disabilities,” says Cheriyakoya. He mentions the Lakshadweep Differently-abled Welfare Association which has been fighting for the rights of the disabled and holding protests to ensure that they get the allowances and benefits due to them. Cheriyakoya gets a disability pension of ₹1500 a month and Safuvana, an education allowance of around ₹6000 per year. However, Cheriyakoya says, “The local government is focusing more on tourism than on the struggles of the disabled.”
 
At one of the medical camps held every few years, Safuvana received a wheelchair but it is unusable now. At the most recent camp, an order was placed for a CP Chair (chair meant for those with cerebral palsy) which hasn’t been delivered yet. Cheriyakoya is looking for support to start a tea shop on Kadmat Island to augment his earnings.


Photos:

Vicky Roy