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“All these kids have a higher Emotional Quotient than we do. We are the ones lacking”

Sometimes, a casual remark can sow the seed of a path-breaking idea. At the turn of the century, Arjumand Makhdoomi was a young government employee showing a Dutch visitor around his city, Srinagar. Its masjids, shrines and temples were familiar sights to him, but not to her. As an outsider viewing them with a fresh pair of eyes, she wondered aloud why there were so many children with disabilities hanging around these places. Did that mean there was nowhere else for them to go?
 
Indeed there wasn’t, Arjumand realised. The seed germinated in his mind and he founded Chotay Taray (‘little stars’) on 5 May 2000 to educate children with disabilities. Like any pioneer he struggled to clear a new path, slashing through the thicket of negativity and misunderstanding that surrounds disability. Finally in 2003 the Chotay Taray Foundation (CTF) started operating out of a single room in Rajbagh with just two children. Till it was registered as an NGO in 2006, it was functioning as a special school but then it started acquiring professional experts to widen its scope and work for the comprehensive development of the disabled.
 
Floods impacted the Rajbagh centre in 2014 and CTF shifted to Baghat. Two years ago it moved to Bemina, which is where photographer Vicky Roy came across nine-year-olds Anisha Sajiad and Eknoor Kour and 10-year-old Mohammad Essa. Counsellor Ranbir Kaur said most kids get referred to CTF but it also conducts periodic surveys or drives to identify those who have fallen through the net – mainly those with under-privileged parents who have little or no formal education and no clue about disability.
 
Anisha was one of those identified in 2020 during the Covid pandemic. The survey missed Eknoor, who lives in the same neighbourhood as Anisha, because her family had moved to Jammu for the winter but when they returned to Srinagar they heard about CTF and took her there. Ranbir explained that children are admitted only after a thorough holistic assessment by the therapist who draws information from the parents, particularly about the “very, very important” aspect of the child’s medical history. “Rehabilitation depends on the child’s condition and mental age,” she says. “We get the best results when therapist and parents work together.”
 
Anisha, who has an intellectual disability (ID), lacked speech and comprehension when she came to the centre but has vastly improved. Her brother, who also has ID, will be enrolled shortly. Eknoor, who has cerebral palsy, could neither walk nor speak but has made tremendous progress with physiotherapy and is due for two surgeries. Her social skills have far outstripped her vocal skills which are developing inch by inch with speech therapy. Essa was referred to CTF. Autism was a foreign word for his parents who thought he was hearing impaired. Ranbir says when he first came to the centre he was hyperactive, flapping his hands, and would neither speak nor respond when spoken to. He too has improved greatly with therapy.
 
CTF provides five services depending on the child’s needs: special education, counselling, speech therapy, physiotherapy, occupational therapy and – for older children – vocational training. It has partnered with UNICEF and Child Rights and You (CRY) to provide home-based rehabilitation services to improve children’s physical and functional independence, and non-formal education in child-friendly spaces to those who couldn’t go to school because of civil unrest. In recent years it has extended its ambit to cover mental health, skill development, livelihood and women empowerment across J&K.
 
Ranbir recalled how she came to CTF in 2017 on a 21-day internship. “My first day was very tough because I had never interacted with children with disabilities before,” she said. “But my last day was the best ever!” She completed her psychology degree and returned to CTF in 2019 as a staff member. “I have loved working with the kids; in fact I spend more time with them than in my own home!” she said. “Here we are given the space and opportunity to explore new ideas and methods. The organisation believes in women’s empowerment: it has mainly female staff.”
 
Speaking about our three ‘stars’ she said Anisha loves music, especially Kashmir folk songs, and hums along to them with ‘actions’. Essa, who reacts to sensory inputs, loves to dabble his fingers in water and is always eager for a cuddle with Ranbir. Eknoor is jolly and sociable; she isn’t too pleased when Ranbir’s attention moves away from her to the other kids! These are just three of the 64 ‘taray’ from ages 3 to 18 whom the centre currently nurtures, and the thousands more whose lives have benefitted from the support of CTF for over 20 years.

Photos:

Vicky Roy